Getting involved as someone with lived experience

We want you to help us to develop our guidance for NHS and care services.

This could be as someone who uses health and care services, a carer, or a member of the public.

As a lay member working with NICE, you will get to:

  • use your experience to help others

  • work with a range of experts, including those who use services, carers and the public

  • build your confidence, knowledge and skills.

You will receive:

How you can help develop our guidance

Find out more about developing NICE guidelines: how to get involved.

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    Join a committee or working group

    Our committees develop and update our guidance, and you can help by joining as a lay member, contributing the perspectives of people who use services, carers, or specific communities.

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    Join our people and communities network

    By sharing real-life experiences and views, network members make a difference to those most directly affected by our recommendations in a flexible and convenient way. We particularly welcome input from individuals aged 16 to 30 and people from ethnic minorities.

Comment on guidance that's being developed

Our public consultations are your chance to let us know what you think about our recommendations on guidance we are developing.

Why you should get involved

Zoe Picton-Howell, lay committee member

Zoe sat on our committee developing guidance for the NHS on end-of-life care for children and young people. She talks about how being part of the NICE guideline was an opportunity to build on her young son’s lasting legacy – Adam, who passed away in 2015.

Hellen Adom, lay committee member

Helen talks to us about the kind of lived experience she has and how this helped to shape our recommendations for those living with sickle cell disease.

Want to know more?

Do you have questions about getting involved with our work? Do you want to know more about how we do what we do? Get in touch.

Our dedicated team develops and supports the involvement of members of the public, carers, people who use NHS and care services and the organisations who represent their interests.

You can either email us at [email protected] or give us a call on 0161 870 3020.