Overview
NICE has reviewed DMD Care UK’s guideline on cardiac care of children with dystrophinopathy and females carrying DMD-gene variations. We think the guideline from DMD Care UK is a useful resource that will help clinicians improve care in this area.
NICE has carried out this review to support improved care and outcomes for people with Duchenne muscular dystrophy (DMD), and to assist health and care practitioners in their decision making. However, NICE has not developed its own recommendations for this topic.
NICE has chosen to present this guideline on the basis that:
- it covers a condition that NICE does not have an existing guideline on
- it was developed using an appropriate process and methods.
Disclaimer
NICE does not assume responsibility for the content of the guideline, including its clinical recommendations, accuracy, or relevance to specific patient circumstances. Healthcare professionals should exercise their own clinical judgment and consider local policies, individual patient needs, and other relevant guidance before applying any information from the linked material in practice.
Your responsibility
The recommendations in this guideline represent the view of NICE, arrived at after careful consideration of the evidence available. When exercising their judgement, professionals and practitioners are expected to take this guideline fully into account, alongside the individual needs, preferences and values of their patients or the people using their service. It is not mandatory to apply the recommendations, and the guideline does not override the responsibility to make decisions appropriate to the circumstances of the individual, in consultation with them and their families and carers or guardian.
All problems (adverse events) related to a medicine or medical device used for treatment or in a procedure should be reported to the Medicines and Healthcare products Regulatory Agency using the Yellow Card Scheme.
Local commissioners and providers of healthcare have a responsibility to enable the guideline to be applied when individual professionals and people using services wish to use it. They should do so in the context of local and national priorities for funding and developing services, and in light of their duties to have due regard to the need to eliminate unlawful discrimination, to advance equality of opportunity and to reduce health inequalities. Nothing in this guideline should be interpreted in a way that would be inconsistent with complying with those duties.
Commissioners and providers have a responsibility to promote an environmentally sustainable health and care system and should assess and reduce the environmental impact of implementing NICE recommendations wherever possible.